Green | February 16, 2008 | 7 comments

LYME DISEASE-Help stop this silent epidemic crawling across our nation

source: http://www.youtube.com/watch?v=mpB287Yx9iQ

darkhorsejim
Having become debilitated from Lyme Disease over 4 years ago, I feel it is long over due that the American public know that our own government, through the CDC (Centers for Disease Control and Prevention) along with the National Institutes of Health (NIH), has blatantly denied the existence of this horrific medical condition becoming long-term or chronic. If one is lucky enough to test positive with our current "Dark Ages" technology, you have to be even luckier to find a Medical Doctor (MD)who understands that the cure is a simple short-term treatment of antibiotics before the debatable treatment window of several weeks to several months closes.

Also, any MD smarter than a bag of hammers can make an easy diagnosis with a patient's physical ailments matched to a lengthy list of irrefutable symptoms, aside from the obvious "bulls-eye rash" that a minority of us Lymies in reality report ever seeing. Once you progress from short-term & easily treatable to the chronic stage & barely treatable when most body systems have been Lyme infiltrated & severely compromised, the nightmare becomes all too real as you struggle to understand how our government & medical community could let thousands of lives deteriorate physically, emotionally & financially, which adversely affects thousands of families, go on for so long without the public outcry that is now necessary to wake America up to a silent epidemic sweeping the nation. I thought the following article & accompanying video would be a good start:

OUT OF ADVERSITY COMES POSITIVE ATTITUDE

Star-Gazette.com February 16, 2008

Victoria Wilcox, 17, is boldly going where many teens have not gone before. Because she's been diagnosed with a debilitating case of Lyme disease, which can often leave her nauseated, weak, confused and fatigued, Victoria has had to grow up fast. Spending more than a month in the hospital at once would have anyone thinking that her glass is half-empty, but this teen has instead decided to view the situation in a more positive light.

Victoria says, "I am thankful for the people it has brought into my life and some things that it has brought to me." And, as a matter of fact, Victoria has focused all of her positive energy and her gratitude into the organization of a Lyme disease walk with her friend, Sarah Lynch, which will occur on June 7.

With the help of friends, family and others who are affected by Lyme, Victoria is hoping that this walk will raise awareness about the disease itself and its prevention. Victoria's Web site, www. lymewalk.org, contains all the information regarding the walk, Victoria's own story about her struggle with Lyme disease and how the public can show its support.

Like Victoria, many teens are compelled to give something back to their community, and she is an excellent example of how one can do so. Despite her own physical limitations, she is determined to do the best she can to help others. So what is her advice to teens looking to make a positive impact on the rest of the world? "Go out there, find a cause, and go for what seems impossible!" -- MARISSA ANGELL, Horseheads High School.

http://www.youtube.com/watch?v=mpB287Yx9iQ
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7 comments // LYME DISEASE-Help stop this silent epidemic crawling across our nation // Video

  • darkhorsejim
    • 0
      darkhorsejim  

    • 2D OF 2 POSTS: You bet your ass that I’m mad as hell for slipping through the medical cracks and being at the mercy of a health care system that has its head so far up its ass that the only way to see this is to open its mouth. Ironically, I’ve really got to know myself & make life changes ultimately putting me on a healthier & happier path, where I’m much more centered & content with a more compassionate view of the world, its citizens & circumstances. However, I never asked “Why me?” or gave up hope of being cured & reclaiming my once excellent health because I was so afraid of losing any ground I had gained & couldn’t imagine prolonging the pain & suffering of this insidious disease.

      I can’t stress enough how important it is to be your own health care advocate-crucial to anyone’s recovery. I don’t know where I’d be without the internet, making it possible to do my own medical research & exchange info with other Lymies EVERYWHERE. A strong network of support from family & friends is equally important, yet can only carry you so far because they really don’t know what it’s like unless they live with you. Over time everyone gets on with their own lives leaving you very isolated from the rest of the world. I don’t know what I would have done or how I could have made it this far without the 24/7 support & care from my fiancée & soul mate who has stuck by my side through the darkest of times on a journey we wouldn’t have been able to comprehend if someone had told us that on Oct 6, 2003 our happy, secure rug would suddenly be pulled out from underneath our lives, changing our destiny forever.

      I never took my eyes off the prize & channeled as much energy as possible into healing & not staying angry which only worked as a motivator that I needed from time to time. I can finally say this is the best I’ve felt in almost 5 years but still have physical limitations & definitely a ways to go. Knowing the hardest part is behind me is the greatest motivator of all to keep fighting back until I’m completely cured. As I’ve done all along, I educate anyone who will listen from my 1st hand experience. IF YOU STEP OFF OF PAVEMENT, CHECK YOURSELF EVERYWHERE FOR TICKS-THEY LOVE THOSE NOOKS, CRANNIES & HARD TO SEE AREAS!

      Be Well!

    • 3 years ago
  • darkhorsejim
    • 0
      darkhorsejim  

    • 1ST OF 2 POSTS: Hey resin-Unbelievably it took 1 1/2 years of excruciating pain & suffering after 9 MDs (Moron Doctors) missed giant red flags of symptoms waving in front of them & 4 misinterpreted L/D test results (I never saw a bulls-eye rash or had a fever), 100’s of vials of blood drawn for dozens of tests, x-rays, a CAT Scan, MRI & even an ultrasound. Finally, the 10th MD, an Osteopath (DO) diagnosed me before I had time to settle into his office chair & then confirmed it through IGENEX, the most accurate L/D testing center in the country. So I slipped from acute and easily treatable, to a nightmarish, debilitated chronic phase during the undiagnosed period while my long-term suffering continued during my 24/7 battle for the next 2 1/2 years with this caring genius.

      Unfortunately, he closed his practice last Oct but had gotten me far enough along the seemingly endless road to recovery with various treatments including: herbs, vitamins, supplements, minerals, dietary changes, RXs (which usually never exceeded 10-15% of my total daily pill regimen ranging between 60-100 pills daily), a summer w/a pic line inserted into my upper arm so I could inject myself daily with vials of antibiotics, as well as starting therapeutic massage, meditation, yoga, (acupuncture did nothing except freak me out a little), 20 mins of sun daily, rebounding (w/a mini-tramp) & who knows what else other than you’ll try anything & everything until something finally turns things around when you feel more dead than alive & suffer with head to toe chronic pain.

      As an Osteopath, he treated all of the body’s systems together, rebuilding my drastically compromised immune system homeopathically instead of purely allopathically, which only works if you’re diagnosed immediately, prescribed antibiotics for several weeks & thus quickly cured without completely fucking up your life in every way possible. I had been in the best shape of my life & cruising along-working hard & playing hard! This has been such a difficult journey. The hardest part having to basically stay inside for a 2 ½ year period because of completely debilitating migraine headaches set off by light, sounds & even smells without much warning other than an aura that indicated I was about to take another trip to hell & back for who knew how many hours or days.

    • 3 years ago
  • darkhorsejim
    • 0
      darkhorsejim  

    • You are so right-Lyme disease really sucks. I'm glad to hear that you are mostly cured. I'm pushing 5 years now & just keep fighting back with whatever works because of how deathly ill I was. I've tried just about anything & everything that keeps me healing. In order to have more good days than bad. I still have to make treatment & activity adjustments from day to day & even hour to hour, but since day 1, I have not given up hope of reclaiming my once escellent health no matter how sick I've been at times.

      I still have right side body numbness from head to toe which I certainly hope will clear up as my overall health improves-I sure get tired of dropping things all the time. Hang in there brother-that's all you can do with this insideous disease. Keep me posted & I'd be happy to share any healing info if you want it. Peace!

    • 3 years ago
  • resin_lungs420
  • resin_lungs420
    • 0
      resin_lungs420  

    • i had lyme disease it sucked alot i was soooooo sick but thankfully it only paralyzed my left side of my face although permanently i can still walk:)

    • 3 years ago
  • heyyitsvic
  • Leb
    • 0
      Leb  

    • Job Well Done on this one ! I as well as many many others continue to suffer with this aweful disease. Unfortunately, Like above mentioned, I had two negative tests while the disease continue to eat me alive. The CDC needs to stop brushing us ( Lyme Disease) under the carpet . While they do that , Lyme disease and other tick borne diseases continue to sweep across our nation.

    • 4 years ago
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