VC2 on TV | March 13, 2007 | 22 comments

Surviving Encephalitis

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Surviving Encephalitis is a story about Steve Devereux who's life has been totally devastated by this rare illness. Steve has been left with severe memory problems causing difficulties in his home life and making him unable to work. For more information about Encephalitis please visit:
www.EncephalitisGlobal.com or www.encephalitis.info

If you found this video helpful then please Green Light it for possible broadcast. More people need to see it. Thanks.
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22 comments // Surviving Encephalitis // Video

  • Ingrid_Guerci
  • lizzyfizz
    • 0
      lizzyfizz  

    • BIG GREEN LIGHT! Thanks. I am a 49 year survivor of EEE (Eastern Equine Encepalitis) and died, revived and at age 11 lay in the hospital 2 weeks suffering while they tried every test to find what was wrong. Now at age 60 I'm having horrible fatigue, memory, anxiety problems being treated with drugs to no avail. I started wondering if EEE had set me on this path and finding this video ad other recent documents are helping me to feel better about myself and the struggles I've had all my life to pass grades in school, fight constant weight gain though no one in my family have weight problems and excessive sleeping/fatigue. It seems that after menopause my symtoms have intensified. My doctor tells me to see a psychiatrist, do a sleep study, take more pills, etc. But now, thanks to you and others who are documenting the effects of encepalitis, I am confident I can work with my good doctor in the right direction for remedies. Thanks so much!

    • 2 years ago
  • survivor
    • 0
      survivor  

    • Thank you for this brilliant video. This time last year I was in hospital with menigo-encephalitis and "recovered"

      I still suffer from all the stuff you describe, memory balance problems loss of confidence etc but have been able to return to work. Sadly there seems to be so much ignorance on this illness within the medical profession, at least once the physical condition has been treated.
      My GP told me to stop going on about it!!!

      Please all you medics out there take note. We still need support when we have "recovered".

    • 3 years ago
  • FionaM
    • 0
      FionaM  

    • I am hoping that it will raise awareness of this illness particularly amongst the medical pofession who should already be aware of it. There seems to be precious time wasted between diagnosis and treatment. We appear to be normal but have great difficulties in understanding and carrying out simple tasks. I have qualifications which are no longer worth the paper they are written on. I can no longer work. Even worse people are needlessly dying - 23 year old John Mealey was misdiagnosed by 10 doctors at a hospital that specialises in neurolgy.

    • 4 years ago
  • Marniee
    • 0
      Marniee  

    • Hi.
      I'm glad you decided to share your story here. I'm also a survivor of Encephalitis - I had it as a child. I also have a short term memory problem and could relate to what you were saying - specifically the fear of saying the wrong thing. Thanks for sharing. :-)

      My Profile@SurviversPlus (a place for Encephalitis Survivors) link

    • 4 years ago
  • devlomedia
  • AvaEaston
    • 0
      AvaEaston  

    • Steve
      I hope you have been in touch with us - we have a number of resources and ways in which we can support you. Please feel free to email me:
      ava@encephalitis.info
      I am the Development Manager of the Encephalitis Society - www.encephalitis.info
      I would also like to discuss with you how we might use your film for training professionals.
      I look forward to hearing from you.

    • 4 years ago
  • louey
    • 0
      louey  

    • its great to watch a very informative clip that helps to explain Encephalitis to the public who probably have never heard or can understand it and the implications to survivors. Thankyou!

    • 4 years ago
  • dink468
    • 0
      dink468  

    • I am very glad to see something awaring the public of encephalitis. I am a relation of an encephalitis survivor. I would like to see the public more aware of the disease so that nobody has to go thru what my family did. Thanks

    • 4 years ago
  • wolftrax7
    • 0
      wolftrax7  

    • I'm a survivor, too. Herpes Zoster Encephalitis '06. Steve's story is my story in every way, except I haven't lost my wife and kids yet... but the relationships are strained.
      ~Stephen

    • 4 years ago
  • LedHead
  • LedHead
    • 0
      LedHead  

    • Brother Steve: I survived Enceph & Meningitis while living in San Francisco, California. I almost DIED before the Neurologists properly Diagnosed this Virus! Fortunately, there are some tremendous resources available to Survivors & Care-Givers. This Summer our group will be gathering for our Annual FACES Conference in Nashville, TN. If you are able to travel~ Join us in Aug on the 17th-19th. In Support~ "LedHead"

    • 4 years ago
  • hollyberry
  • Ingridrg
    • 0
      Ingridrg  

    • I am a survivor of encephalitis and run an email support group (www.health.groups.yahoo.com/group/encephgroup/) and am a member of the BoD of Encephalitis Global (link the U.S. Not enough people know about encephalitis (including the doctors who do not diagnose you fast enough) and friends and family who think that because you look fine, you must be fine. I want everyone I know to see this. Maybe they will have a better understanding of what I have been going through for the last 11+ years. I am not the same Ingrid I was.
      Ingrid/NYS
      HSE 12/95 (I was 45 years old)

    • 4 years ago
  • Jaqueline
    • 0
      Jaqueline  

    • I too am an Encephalitis Survivor of 16 years. Thank you for making this video. Steve do you know about the group Encephalitis Society and the email Encephgroup?

    • 4 years ago
  • wendystation
    • 0
      wendystation  

    • This is excellent! Thank you for sharing.... I hope this video can be shared everywhere. Encephalitis is clearly explained, and puts a picture to the "you look okay, you must BE okay" problem which encephalitis survivors cope with every day.

    • 4 years ago
  • JadedMultimedia
  • sholao
  • bubleboo
  • Neghie
    • 0
      Neghie  

    • Didn't know about this illness. Felt I learned something new and this was well put together. Perhaps some music weaved in somewhere would have been a plus for me, but a big GL none-the-less.

    • 4 years ago
  • spiral
  • richar
    • 0
      richar  

    • I have to say what a really great video! I have a very good friend that died from Encephalitis and she suffered in the worst way - Good Work GL!!!!!!

      Please check out my Pod:
      Any Dad

    • 4 years ago
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