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Protein Can Be Poison

The Pod Shows a small portion of my life with Phyenylketonuria (PKU), a genetic disorder which, if left untreated would leave me mentally retarded. Essentially my body cannot break down phenylalanine, a specific component of protein. Because of this I must completely avoid all foods containing protein (which is basically all foods). In order to gain proper nutrients I am required to a large amount of supplements everyday of my life in place of a normal diet. The video shows the daily supplements I take, as well as presents a few issues facing the first generation of young healthy adults with PKU the world has ever known.
  • video added October 16, 2007
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9 responses // Protein Can Be Poison // Video

  •  

    Whoa. That looks like it totally sucks. Thank you for sharing that, Philip.

    Tori
  •  

    Holy wow! That is just amazing. Watching this I could almost feel what it must be like to go through this...

    Didn't even know PKU existed before this. Thanks for sharing.

    Viva la vida!
    http://current.com/items/85088451_better_the_devil_you_know

    FridaKahloLives
  •  

    Thanks for this pod
    I had never known about PKU until now

    Ice_cream_Man
  •  

    Thank you for sharing what it's like to have PKU. Your video is enlightening.

    jwrick
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    I'd heard of PKU but never really understood exactly what it was. Thanks, Phil, for giving such a good explanation. More people would like to know about PKU, I'm sure.

    2katew
  •  

    Philip, thank you so much for sharing your experience. I learned a little about PKU in a human development class, but I never knew the extent of the difficulties it causes. Your pod was incredibly eye opening, and I hope it makes more people aware of PKU.

    sharibody
  •  

    Thanks so much for making this and sharing your story.

    ocanada
  •  

    I think this is an excellent explanation....Showing the
    supplements was very informative.
    In a short amount of time , you really gave both the scientific definition and the reality of day to day life.
    Well done!!!!!!

    giants4
  •  

    Wow... I thought PKU sufferers mostly couldn't have diet soda... I didn't realize it had far worse effects.

    My heart goes out to you and all the others with this condition. Keep on keepin' on.

    SonicSubculture

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