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Alice - The story of a family and their disabled child | Contact a Family

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Ten-year old Alice was born with Sturge-Weber syndrome, a congenital disorder involving the brain, skin and eyes. This is the story of a family and their experiences in caring for a disabled child.

For more information on Sturge-Weber syndrome, please visit the Contact a Family directory: http://www.cafamily.org.uk/Direct/s63.html

If you would like any information about specific conditions or rare disorders, you can access the Contact a Family Directory here:
http://www.cafamily.org.uk/dirworks.html
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2 responses // Alice - The story of a family and their disabled child | Contact a Family

  • Been there, done that, still doing that, wear the T-shirt every minute of every day.

    Caring for a disabled child becomes your life and is at the center of every decision you make every single day. And in the US there is zero financial assistance for caring for a disabled child at home.

    seeker561
  • Excellent piece, very sad but quiet heartening too. Alice and her Mum are very brave.
    StrangeConversation

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